Frequently Asked Questions
Who can participate in this study?
The study is interested in the experiences of two groups of people:
1. Adults who experienced difficulty breathing (called ARF), received care in one of the Intensive Care Units (ICUs) at Johns Hopkins Hospital or Bayview Medical Center and then returned home within the last month.
AND
2. The close friends and family members who help them recover at home.
What happens if I join this study?
If you are eligible and choose to participate, we will ask you and your loved one to each:
1. Talk to a member of the study team either by phone or in person for about 30 minutes, and
2. Complete 3 surveys over 6 months. Surveys can be completed online, over the phone, or on paper at times that are convenient for you.
What does IDEAS stand for?
Investigating Dyadic Expectations about ARF Survivorship.
What are you trying to learn from this study?
We know that recovering from serious illness at home sometimes requires lots of time and help from family and friends. We want to learn what patients and their care partners expect will happen when they return home and how they manage care needs during recovery. We hope this information will help other people recovering at home in the future.
Do I need to return to the hospital?
No.
Will I be paid to participate?
Yes! Participants receive a $25 gift card to Amazon.com each time they complete a survey.
Who's running this study?
Alison E. Turnbull, PhD is the principal investigator and an Associate professor in the Division of Pulmonary and Critical Care Medicine at Johns Hopkins.
Who's funding this study?
The National Institute of Health’s Heart, Lung, and Blood Institute.
Will I get to see the study results?
Absolutely. We will share the results with all study participants when they are published.
How will my data be used?
If you complete the study, your responses to study questions will be used anonymously for this research only. They will not be published or shared for any other reason.
Is this IRB-approved?
Yes, this study was approved by the Johns Hopkins Medicine Institutional Review Board (IRB00429340).
I have another question. Who should I contact?
Please contact the principal investigator at ICUstudy@jhmi.edu.